Parents of children with Spinal Muscular Atrophy (SMA), a rare disease, say the budget is mere eyewash; custom duty exemption ...
Scholar Rock submitted its BLA of apitegromab for the treatment of patients with Spinal Muscular Atrophy with a request for ...
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So the outcome and the long-term outlook for our patients with SMA, particularly in the adult populations are that they are now stronger and living longer. And so as a result of that, they're able ...
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Finance Minister Nirmala Sitharaman announced a full exemption from basic customs duty (BCD) for 36 live-saving drugs to ...
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
An investigational higher dose of spinal muscular atrophy drug nusinersen gains attention as the FDA and European Medicines ...
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...
The Amsterdam-based biotech firm said that its melt curve analysis-based test is used as a first-tier genetic screening tool to aid the diagnosis of SMA.
Scholar Rock (SRRK), a late-stage biopharmaceutical company developing innovative treatments for spinal muscular atrophy, ...