Mumbai Woman Praises IndiGo For Ensuring Smooth Travel With Wheelchair-Bound Daughter
In a LinkedIn post, Monisha shared the challenges of travelling with her 14-year-old daughter, Keya, who has Spinal Muscular ...
TheHealthSite7d
Raising Awareness On Spinal Muscular Atrophy: The Silent Battle Every Indian Should Know
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People with spinal muscular atrophy demand urgent action from the Centre to reduce medicine costs
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Pharm Exec2d
Biogen Seeks FDA Approval for a Higher Dosing Regimen of Spinraza for Spinal Muscular Atrophy
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
Mumbai woman expresses gratitude to IndiGo for hassle-free journey with her wheelchair-bound daughter
A Mumbai woman praised IndiGo Airlines for ensuring a smooth travel experience for her wheelchair-bound daughter.
The Week2d
Spinal muscular atrophy: Patients, activists seek health ministry’s intervention to bring down medicine cost
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...
Hannah and Shane Burcaw Say IVF Journey Has Been ‘Heavy’ to Share as They Open Up About Interabled Relationship (Exclusive)
Known online as Squirmy and Grubs, YouTubers Hannah and Shane Burcaw have over 1.8 million subscribers. The married ...
Managed Healthcare Executive2d
FDA and EMA Accepts Applications for New Nusinersen Regimen
An investigational higher dose of spinal muscular atrophy drug nusinersen gains attention as the FDA and European Medicines Agency (EMA) considerate it as an alternative than the current lower ...
FDA and EMA Accept Applications for Higher Dose Regimen of Nusinersen in SMA
We are pleased to announce that our applications for the higher dose regimen of nusinersen are now under review in the US and Europe,” said Stephanie Fradette, Pharm.D., Head of the Neuromuscular ...
The Remarkable Normalcy of Being Disabled and in Love
In a new essay collection, the influencer couple Shane and Hannah Burcaw peel back the layers of “interabled” relationships, ...
360dx4d
MRC Holland Gains IVDR Certification for Spinal Muscular Atrophy Newborn Screening Test
The Amsterdam-based biotech firm said that its melt curve analysis-based test is used as a first-tier genetic screening tool to aid the diagnosis of SMA.